Friday, March 15, 2013

Happy 9th Birthday to our "Lily Girl!"


Dear Lily Girl,

      Happy 9th Birthday to our beautiful girl!  As always I start these letters out by looking at the photos that we took of you over the last year.  I think we can all agree the transition from age eight to nine has most definitely had it's "highs" and "lows." However, I believe we can also agree that you moved into your ninth year on a definite "high note" with the arrival of your sweet Honey Bear!

     As I put you to bed last night and shared with you the story of the day you were born I was astounded how vividly I remembered those moments.  I honestly remember meeting you and holding you for the first time as if it was yesterday.  I remember feeling so overwhelmed with this new level of love that my heart was experiencing for the very first time.  What I had no clue of, at that time, was that I was only barely touching the surface of the deep well of love that existed in my heart for you.

     This year I discovered another level of that love as I watched you struggle and hurt.  The beginning of that loss of the blissful, oblivion of childhood was very evident over this year. Disappointments at school, rejection, friendship troubles, insecurities about your self image, and even discovering the truth about Santa were all very rough realities that this last year brought with it.

     However, it gave us an opportunity to tap deeper into that "love well" for you.  It gave us the chance to sit with you, hold you and pour out upon you ALL the truth we know about who your God created you to be!

     The reality is my sweet Lily Girl that this life is really rough sometimes.  I wish I could say this year was the end of those disappointments and challenges. However, it is my hearts desire and prayer that you will forever remember WHO you are in Christ Jesus and that in Him we have a hope and a future.  I hope you will always know as well, that when it is difficult to remember or hold on to that truth, that your Daddy and I will be right beside you praying and reminding you of OUR love and HIS love for you!

     Below are some photos over the last year that I believe capture the true essence of who you are my sweet, beautiful and gifted daughter.
                                                                                    All my Love,
                                                                                       Mommy

An incredible Big Sister that loves her "bubby" very much!


A "Prayer Warrior" you prayed for your Auntie Stace
and God answered your prayers in a mighty way!
So grateful you have her in your life!
A "BFF".  God answered another prayer and brought you a great friend that lives right across the street from us!
"Our little fish!"  I love to watch you swim and play in the water!
You are a natural and your love for  swimming is in your blood!
Fun, energetic and creative!  Your friends love to come play at your house!

"Daddy's Girl"!  You have a special bond with your Daddy!
You are confident and secure in every ounce of his love!
He has done an amazing job at setting an example
 of how a man is to love you someday!
"A lover of animals!"  We are so thrilled we could finally get you your hearts desire!   
A girl with one of the biggest hearts of anyone I have ever met!
You have received the "Caring" award 4 years in a row:)

Generous and loving!  
You baked this cake for your Daddy to congratulate him on the new shop!  
All your idea!
"Our Rock Star in the making"!
I love that you are so self confident you will get up in front of a crowd of strangers
and rock out with your favorite "Rock Stars!"
"A Happy Camper"!  You absolutely LOVE camping!
You are not afraid to get dirty and enjoy every ounce of the experience!
"A Brownie"!  You have enjoyed joining Brownies this year!
"A bit crazy with a great sense of humor!"
You love to laugh and enjoy life
and don't take yourself to seriously most of the time!
"Helpful"! You loved helping Grammy decorate her tree!
              
"Our nature lover!"
You still love to explore and find "treasures".
  You have done this since your were just a little girl!























"Lover of books"!  I love to see you read and
hear you tell, in great detail about the stories you have read!
 

I hope you never stop wanting me to sing to you
 my sweet "Popsicle Toes!"

Happy 9th Birthday
"Popsicle Toes"
I love your popsicle toes, your sweet little nose,
your eyes that shine bright as the sky!

I love your popsicle toes, I even love your elbows,
love your belly belly belly button too!

I love your arms and your legs,
your Father made no mistakes,
You're perfect in every way!

And I just can't get enough of that sweet little touch,
 it chases all my blues away....



Friday, January 25, 2013

"A View from the Other Side of the Bedside"


I have been a Registered Nurse for just over 17 years now.  I have worked most of my Career in a Critical Care & Recovery Room environment. I have worked 11 of my 17 years at Kaiser Roseville.  

     I left Nursing School ready to fight for every patient, ready to advocate, stand in the gap, treat every patient as if they were my own family member.  I had this extreme sense of pride and felt as if I was fulfilling the “calling” or “mission” for my life. 

     Now, 17 years in, I still consider myself “above average” in most of those areas. However, there are areas in which I have grown complacent, grizzled, jaded and judgmental.  I rush.  I avoid eye contact.  I am annoyed by patients and their family members.  I am lazy, inflexible and if I am completely honest...I have lost sight of who I am and what I am called to be as a Registered Nurse.

     I believe in God. It says in the Bible that “in all things God works for the good of those who love him, who have been called according to his purpose.”  I believe that the experiences I have had over the last two weeks, although painful and difficult for my family and I, will be used to bring about “good” in my future as a nursing professional and in the lives of my future patients and their family members.

       On Saturday January 5th I received a call from my Mother-in-Law that my Father-in-Law had passed out and fallen in the garage.  I immediately encouraged her to call 911 and have my Father-in-Law taken to the hospital.  She did, and he was, and so began my metamorphosis as a nursing professional.  

     What’s interesting about this experience is that it is not necessarily new for me. I have had the roles reversed in the past. I have been a family member to a dying or ill loved one in a hospital setting.  I have also been a patient.  For some reason this time around has effected me on a much deeper level.  I can honestly say that my approach to my profession has been irrevocably changed.  

     My Father-in-Law was transferred priority one to another local hospital for severe Aortic Stenosis and underwent open heart surgery to replace an Aortic Valve.  After a fairly routine recovery it was decided that he was ready to be discharged.  I was unable to be with my family at the time he was being readied for discharge.  My family called with some concerns about the sounds of his breathing and his shortness of breath.  I encouraged them to bring this immediately to the nurses attention.  They did and were told that patients “can sound like this.”  After I got off of work I arrived to check on my Father-in-Law who was in extreme respiratory distress.  We called 911 and he was readmitted to Kaiser Roseville within 3 hours of discharge in respiratory failure and acute CHF.  

   
     I was now in that oddly uncomfortable place of knowing too much and not enough all at the same time.  That place that so many of us as health care professionals have been when we are thrust into standing with a family member through a trying medical experience.  You feel powerful and powerless.  You hold the credentials yet have no actual power to assert them.  You watch the others putting their stethoscopes on your family member, drawing labs, starting IV’s, giving meds.  It is a careful balancing act to maintain the perfect “poker face” while at times biting your tongue and holding your breath until you feel as if you may explode.  Then you finally decide to say something...You decide that it is time to drop that ever so subtle hint that you may know a little more than the “average bear”.  

   Admit it, as medical professionals we have all been there at one time or another. You are going about your business, caring for your patient.  Then you know “THAT FAMILY MEMBER” drops the hint.  Some of us choose to ignore it initially, all the while “uping our game” a bit in the off chance this person may actually know what they are talking about.  As the family members hints get more obvious, we at times grow more defensive.  That defensive dynamic that exists between the care giver and THAT FAMILY MEMBER”, is one that is difficult to explain but it is such a common reality.  A reality of which I have experienced first hand in a major way over the past two weeks.  The reality of this “dynamic” has contributed in a profound way to one of the areas of personal growth & transformation I feel that is happening in my career as a nursing professional.

     How does the saying go...”don’t judge a man until you have walked a mile in their shoes.”  Well I can say I have walked well over a mile in those shoes over the past two weeks.  Standing in the shoes of “THAT FAMILY MEMBER are the shoes of someone who is very afraid for the life of someone very dear to them.  They are the shoes of someone that knows and has seen the “worst of the worst”.  “THAT FAMILY MEMBER” has seen this situation their loved one is in and it hasn’t always turned out the way you are telling them it will.  They are most importantly the shoes of someone who is being looked at by other loved ones for answers and explanations and the pressure is great. 

      I have learned that rather than seeing this person wearing these shoes, as someone who is trying to outrun you.  More importantly see them as someone who is just there walking beside you through the process of seeking the best possible outcome for your patient and their loved one.  Welcome their questions.  Seek their input without being threatened.  Share information with them on a level they can understand and don’t condescend to them.  They are your team members in this race, NOT your opponent.  

     This “defensive dynamic” I speak of was much more “the exception” than it was “the rule” during my experience.  Especially at Kaiser Roseville.  However, it existed and it is because I experienced it that I learned so much about myself and the nurse I aspire to be.  


     You see I want to be a nurse and work with a team of nurses like the ones working the night shift in the ICU at Kaiser when my Father-in-Law was admitted.  We were so warmly greeted by everyone.  Anne his nurse gave us reassurance and helped encourage us to go home and get much needed rest.  I want to be the kind of nurse that leaves a lasting impression on you, like Hillary.  She had a kind, compassionate way about her that put all of us at ease.  I want to be a nurse like LaiLani.  She took the time to sit down in the midst of her very busy day and return my phone call to tell me how my Father-in Law was doing.  I want to always be a nurse with keen assessment skills like Monica & Becca.  They saw that my Father-in-Law was struggling, followed their instincts, made the right calls and made things happen.  They are incredible nurses and deserve to be acknowledged. I would like to have the same jovial bedside manner as Tony in the ICU. He kept my Father-in-Law in good spirits under a trying and difficult time.  I aspire to be a nurse like, Julie, who disarmed me with her peaceful spirit and warm reassurance when I felt out of answers.  I slept so well that night knowing he was in her care.    

     Finally I want to be a patient & family advocate like Joann in the ICU.  She stopped & listened to our concerns.  She then thoroughly assessed my Father-in-Law, passed the information on to Dr. Hajar.  He then took the time to meet with us, consider our requests and plan my Father-in-Laws care with them in mind.  We felt heard! 

     I have learned that we can NEVER underestimate the importance of those two letters next to our name.  We are Registered Nurses. With those two letters come extreme honor as well as incredible responsibility.  Regardless of how healthcare is changing there is one thing that will NEVER change.  We have the power to “make or break” a situation.  We have got to LISTEN to our patients and their families.  We have got to LISTEN to that inner voice inside that tells us something is not right!  We have got to be the eyes and ears for the Dr’s when they cannot or will not be at the bedside.  We have got to remind ourselves of who we are and why it is we do what we do!!!

     By no means am I saying I think I will now go out and be a perfect nurse.  In fact, I worked today and felt far from that most of the time.  What I can promise however is that I am going to be intentional with what I have learned through this.  I am going to take some time before I go into work each day and remember the lessons learned over the past couple weeks, both the good and the bad.  Finally, each day when I pin my badge on my uniform and put my stethoscope around my neck I am going to take a minute to recall my experiences from the other side of the bedside & thoughtfully consider my “calling”  as a Registered Nurse. 

Saturday, December 29, 2012

"Beautiful, beautiful, beautiful, beautiful Boy"

Dear Zion,

     Happy Birthday my big three year old boy!  I can't believe it has been three whole years since I first laid eyes on your handsome little face.
     I looked back over the photos we took of you throughout this past year and was reminded of how very grateful I am for your life.  You came into this world "fighting" and strong.  You have proved every day of your life so far that you will live up to the very large and strong name that we gave you.
     You my son are the definition of a "strong willed child."  This photo shows one of your first timeouts. You were so determined not to sit down or stand on your timeout matt.  For over an hour and a half you refused to do so.  You got so tired that you began to fall asleep standing up!  Yes, my "little soldier", you are a force to be reckoned with!  However, as the year has progressed so has your compliance.  We have grown as parents in the area of discipline and you have learned to "choose your battles" a little more wisely.
As challenging as you are at times, I could not be more grateful for your strength and resolve.  I truly believe it will be one of your greatest strengths someday.  But for now, I believe that stop sign and you will have quite a few more bonding moments in your future.

     One of your most favorite people in the whole wide world is your big sister Lily.  You both have developed such a deep love for one another.  However, as you have gotten older this year you have grown much more able to get into your sisters business.  This has come with a price and it's not uncommon to have full blown "sibling rivalry" moments scattered throughout our day.  After the dust settles and kisses, hugs and apologies are dulled out you both return to being each others biggest fans.

     You are also a "Daddy's boy" through and through!  You absolutely LOVE your Dad and enjoy spending time working at your "workbench" creating things together. You look forward to your "Daddy days" (the days mommy goes to work) every week.  One of your favorite places to be is "cuddling" with your Daddy.

One of your biggest accomplishments this year is that you are fully potty trained!  It took much longer, 6 months to be exact, but success was finally yours!!!  You are so proud of yourself and love that you finally get to wear "big boy chonnies" all the time!  Mommy and Daddy are super excited to have the $80 bucks back in the monthly budget as well!


Some more fun and "firsts"....
You and "your Rah Rah"


"You so Crae Crae" (Thanks Rox)


 Our Mighty Dragon Slayer

Can you "wink like an owl hiding in a tree?" (a line from one of your favorite books)

You are so "Rock n Roll"


 You love to fly kites

 You love your BFF "Grady"
 Such a handsome little man!
 Our little "structural engineer"
 You loves you some "Nuffins"...AKA doughnuts
First time eating cotton candy! You weren't sure at first and actually threw it on the ground!
First trip to Disneyland

You had an amazing time and were such a trooper!
First time putting the star on the tree!


Always making us laugh!


     It is hard to to explain my deep love for you my son.  There are moments when I am so overwhelmed by this love it literally takes my breath away. Moments like when we are cuddling in bed on a slow Saturday morning.  I pull you close, so close that I can feel your heartbeat and smell your sweet stinky breath and I am overwhelmed by a love that I can only explain as intoxicating. 
    You are one of the most amazing gifts a mother could ask for and I am so very grateful God chose me to be your mommy.  Happy Third Birthday my "beautiful, beautiful, beautiful, beautiful boy!"
                                                                                 All my love,
                                                                                    Mommy


   

Thursday, December 20, 2012

I thought we'd make it one more year...

Tonight as Lily and I snuggled in bed to read our Christmas books I looked over and saw tears welled up in her eyes.  "Mom", kids at school keep making fun of me because I still believe in Santa Claus."  "They keep saying that it's just my parents, IS THAT TRUE?"...

The moment had come.  The moment any parent that chooses to celebrate the tradition of Santa expects to eventually confront.  Mine was  tonight....and I am very sad:(

Last year she asked a couple leading questions, however, with some creativity we were able to pull it off for one more year.  Tonight I knew that was not going to be possible.  It was time...

I think my initial silence was enough.  I think in her "heart of hearts" she knew what was coming. Tears streamed down her beautiful round cheeks.  I got a book out of our book basket that told the story of Saint Nicholas and read it to her.  As I read I also prayed that God would give me the words to explain it in a way that she could understand and that would comfort her in her disappointment.  He did and the conversation we had actually went far better than I had imagined it would.

It is unfortunate that it is only days before Christmas and that the conversation could not have waited just one more year.  But for whatever reason tonight was the night.

Even as I write this I am struck by the overwhelming sense of gratitude.  As sad as that conversation was to have I am grateful for each day and each conversation I am given with my Lily girl.  My heart aches for the parents, families and children in Connecticut  that are having very different and much more difficult conversations during this holiday season.

So I will choose to remember and cherish our conversation tonight as a gift.  Another day with my precious children, another Christmas to celebrate together as a family.  God is so good and I am grateful.
 Lily at Disneyland with Santa just a few days ago!

Monday, December 10, 2012

I wish you had met them.


Dear Daddy,

     As I sit here reflecting on this day, ten years since your passing.  I am a range of emotion. Being at the Lake yesterday stirred up some pretty amazing and precious memories for me.  I will never take for granted that I was blessed with the opportunity to come along at a much different, more tolerant, patient and somewhat tenderized season of your Fatherhood.  Although, it is a very long time since I have baited a hook or cast a line, I will cherish forever the memories of spending this time with you.
    As I watched my two beautiful children play along the shore yesterday I realized that although being the "baby" of the family had so many advantages, it came with one significant disadvantage.  You never had the chance to meet two of the most incredible people I have ever met...my Lily and Zion.  I can't help but see how you would fall madly and deeply in love with these two.  I think you would see a whole lot of me in our Lily girl.  I guarantee she would be right there with you in that boat baiting your hook with night crawlers.  Our girl is not afraid to get a little worm guts on her.  She has the most tender and loving soul. Her heart and compassion for others is something I know you would admire.  I also know you would appreciate her bright mind and would love to hear of the many exciting and interesting facts she is always sharing.  Being someone who appreciated a good laugh, I know you would enjoy her vast array of "knock knock" jokes!
    Zion would be your gardening buddy.  I can just visualize him following you around the backyard watering just like the other Grandkids used to. He would also be the one hanging out in the garage with you. You would love to watch him Dad!  He loves to "tinker" just like you did. He will spend huge chunks of time working on projects at his workbench.  He bends and balances things until they are just so and them steps back with his hands on his hips and inspects them to make sure they are just right.  You would so appreciate his attention to detail.  He even throws mini fits just like you would when things don't go just right.  I'm am however grateful your talent and gift for expletives don't accompany his tantrums:)
     I am also very sad you didn't have more of a chance to get to know my Jeremy.  I know that in the time God gave you both you developed a quick and special bond.  I think you would be so proud of what he has accomplished.  I know he deeply loved and respected you and I am very grateful you were able to know him for the brief time you did.  You would especially appreciate the fact that he is most comfortable wearing your much beloved "Bibs" and they are a regular part of his wardrobe now.
      I have no idea how things work up there in Heaven.  Maybe you do know all these things and that would be pretty cool.  I can honestly say as we were leaving the Lake yesterday and I looked up in the sky and saw that Hawk circling above us, it definitely made me wonder.  Regardless of how it works here on earth I take such comfort in knowing that we will all be reunited with you someday in the presence of our Lord and oh what a celebration that will be.
                                                                                    All My Love,
                                                                                        Nanny


Tuesday, July 24, 2012

The "Situation Changer"

     I haven't written a blog in over a year.  I have been looking for something to inspire my writing and something today did the trick.
     Our daughter Lily has always been very strong willed.  Over the last two years, since her brothers arrival, her strong willed personality has ramped up to "super charge."  She literally challenges our every request..."but mom...," "I was just...", "It's not...".  There is rarely a time when we ask her to do something that she does not have some sort of response other than "yes Mom or yes Dad."  If you are a parent and have experienced this yourself you can relate to the exhausting nature of these verbal interactions.  Why doesn't she just do what I asked the very first time with no arguing or complaining?
     This morning I read a particularly inspiring devotional that encouraged me to have no more "Unglued Mamma mornings."  You know those mornings where you are rushed, frazzled and your children seem to be in slow motion.  Those mornings that bring out the very best in you as a parent and person ;)  I am ALL to familiar with those mornings and have been having way to many of them as of late.
      As a mother there is the all too familiar and powerful emotion known as "mother's guilt."  I have also been experiencing more than my share of it lately, in regards to my relationship with my daughter.  I so desire to do right by her.  More often than not I end up defeated having those "what have I done wrong" thoughts overcome my mind.  Today, even after my encouraging devotional and my attempts at not having an "unglued mamma morning", I still left the house frustrated and disappointed in how both my daughter and I handled the morning.
     We joined my sister-in-law and her kids at our local "cement slide park" for a picnic.  We enjoyed a good couple hours that unfortunately ended on a pretty dramatic note.  A young man playing baseball with his brother and friends was struck in the head with a hardball and lost consciousness. We ended up calling 911 and assisting the boy while we waited for the paramedics to arrive.  I do believe he will be ok but with my background in trauma nursing and the divot in his forehead I knew we should "air on the side of caution."
     The young man was taken away and we packed up our stuff and headed for our cars.  As we were walking my daughter said to me, "Mom, as soon as we get in the car I think we should pray for that boy."  "You, are absolutely right, my love", was my response.  And boy, did she.....  We got into that car and my daughter prayed the most beautiful, eloquent and mature prayer I have ever heard come out of her mouth.  It literally took my breath away.
     On the drive home I was overwhelmed by the power of the Grace of God that I have not experienced in a very long time.  As a mother, I may have failed in many areas, but God very clearly showed me in that moment, that one thing I have done right is pray FOR, WITH & AROUND my daughter.  Lily, even at 8 years old, clearly demonstrated that she believes in the power of prayer as something that can change a situation!  I was so proud of her and so humbled all at the same time.
     So will I have more "unglued mamma mornings?"...Absolutely!!!  However I will now remember this day when my daughter taught me to go straight to the SOURCE and directly to the "situation changer", Himself!
     
 

Thursday, February 10, 2011

Information Overload!!

     Well, the day is winding down.  Lily is having a play date with some neighborhood friends.  Zi is about to go down for a much needed nap.  I should probably be doing and folding the mounds of laundry that have piled up in only two days.  However, as I mentioned before one way I process information is by writing.   I will now attempt to "download" all the information from todays appointment with the Hematologist that is still whirling around in my brain onto this page of our blog   What better way to make sense of all the new information we received today and update everyone all at the same time.
     We had an appointment scheduled for 10:15 this morning.  This was during Zi's regular nap time.  As you can imagine it was a bit of a challenge keeping him content, especially due to the fact the Dr. didn't come into the room until almost 11:15.  I kept perspective the entire time realizing that he could have been speaking to a child's parents that were going through something much harder than we were.  They may have had a list of questions even longer than mine.
     The Dr. spent at least 45 minutes with us, covering both Zi's diagnosis of ITP and why, based on his lab results and clinical presentation he did not believe Zion has Leukemia.  Acute ITP usually presents after a child has experienced a viral illness.  Based on the fact that Zion was sicker than a dog about 3 weeks ago after his six, (yes six all at the same time) vaccinations and viral illness that came on at the same time, it made perfect since and confirmed even further the diagnosis of ITP.   Basically, he explained ITP as "friendly fire."  When Zion's  immune system was hit with a big job to do it "went into overdrive" and the antibodies that your body usually makes to fight infection for some "unknown reason" began attacking his bodies own platelets and attaching themselves to them. Then his spleen which has the job of destroying the cells that the antibodies attach themselves to gets a bit confused and just destroys these good platelets that the antibodies are hitching a ride with figuring they are "Foreign invaders."  Yikes, "information overload," hence the title of my blog today.
     The Dr. then went on to explain all our treatment options which ranged from doing nothing to admitting him as an inpatient and giving him an IV treatment over a three day period for six hours a day.  Based on Zion's age and stage of life (a one year old learning to walk) and the possibility of getting injured and causing dangerous bleeding the Dr. did not recommend the "doing nothing" option.
     So where do we go from here.... We have chosen the least invasive route to begin with and would like you to join us in praying that this approach would work and completely cure Zion's condition.  We began heavy doses of oral Prednisone today and will taper (or decrease) his dose every 4 days based on his lab results for an initial period of 16 days. Yes, that means every four days we will be going to the lab for blood draws.  In addition Prednisone has some unpleasant side effects. We obviously are not looking forward to this but are more than willing considering what our news could have been yesterday.
     I was so concerned to give Zion his first dose today.  Normally he takes medication well but the pharmacist warned me that although it was flavored it was extremely bitter.  She encouraged me to taste a little on my finger prior to administering it to him.  Let me just say, I can sum it up in one word...NASTY!!  I prayed big time before giving it to him and God is so good.  Zion took it like a champ and actually wanted more!  He also loves to suck on Lemons... go figure!
     So that's the latest!  We are asking for prayer that Zion will respond beautifully to this first line of treatment and be completely healed! The information that I have read says that Acute ITP is curable in 80-90% of children diagnosed as early as Zion.  Praise God!  Please pray our little man falls right smack dab in the middle of that percentage!  Please also pray that he does not suffer any of the unfortunate side effects of these steroids.  We would also pray for protection from injury and infection and especially that our family remains healthy during this entire process.  One of those "unfortunate side effects" is that they are more prone to illness while on the Prednisone.
    Lastly, I want to again thank everyone for your outpouring of love, support and prayer.  Your comments are just so uplifting and have encouraged us tremendously.  We love you all and will continue to keep you posted as we navigate these "uncharted waters."
Zi Zi....always into somethin!